securely via

Updates from other organisations this month (June 2022)

June 24, 2022

-UPDATED JUNE 2022 -



NEW INFORMATION ON LOCAL ORGANISATIONS WILL BE POSTED HERE. PLEASE ALSO SEE OUR PERMANENT INFORMATION SECTION HERE



Hounslow Parent Carers Forum - the recent SEND inspection.

As you may be aware the outcome of the Ofsted/CQC SEND Inspection was a fail. The Council are aware that they need to improve things in many areas and it is going to be very important for parent carers and young people with SEND to have their say in what support and services are needed, and indeed this is an area that they have been told to improve on.

The Council have appointed Rebecca Eligon from Collaborate to help with coproduction and getting parent carers and young people with SEND's views heard and she would like to meet up with parent carers to discuss the results of the inspection.

The WSOA will need to show how it will tackle the following areas of significant weakness:
  1. Poor quality of Education, Health and Care plans, including preparing children and young people for adulthood
  2. Poor communication and a lack of co-production with partners, including the workforce, parents, carers, young people and other stakeholders
  3. Weak commissioning arrangements for therapies, meaning that some children and young people do not get the help they need early enough. In addition, there are unacceptable waiting times for some therapeutic assessment and support, including speech and language therapy and occupational therapy.
  4. Weak quality assurance processes to evaluate the area’s work to bring about improvements across education, health and care.


SURVEY FOR PARENTS

Please give your feedback on the report and the weaknesses it highlighted:

https://haveyoursay.hounslow.gov.uk/sendiass-special-educational-needs-and-disability-information-advice-and-support-service/parents-carers-survey-following-joint-send-inspect/?fs=e&s=cl&fbclid=IwAR0FHMuq8R_vHHZPNGWlYPMQduxywydSMnbG7a5oG_yqWO1GktwCt6HyZw8


The report is available here:






RUILS

Ruils has launched the 3rd edition of the Richmond Bridging the Gap booklet and the 2nd edition of the Kingston Bridging the gap booklet to give you the most up to date information on mental health support services available. 


Peer support and well-being at Ham children's centre 

The Family Matters Richmond team is commencing a 6-week peer support and well being group for parents with disabled children, at the Ham Children’s Centre.

Through our work with Family Matters, we have found there is great value in families helping families through similar shared experiences. Our hope is to provide group members with an opportunity to explore current personal and family challenges within a safe, friendly and non-judgmental space. The team is looking forward to embarking on this new initiative, in the hope that it may be rolled out across other centres in the borough, if successful. 

You can find out more about family support workers Martha and Surabhi and the Family Matters project here


Connect2Tech 

Ruils is delighted to provide the opportunity to try-tech-before-you-buy-tech.

Ideal for those who are not sure whether they need a smartphone or tablet, Alexa or laptop, Ruils can provide a device for up to 3 months for you, or your loved one, to try in the comfort of your own homes. After this trial period, the team will also support you to purchase the device, if you like, or decide what would be more suitable to try.

Although we are unable to purchase WiFi or Data packages, the team are on hand to support you in finding the right package for you to use for the duration of the trial period and beyond.

For more information email connecttotech@ruils.co.uk




Planning for the Future – Wills and Trusts
A workshop from RUILS

When: Wednesday 13 July at 10am
Where: Online

For families and carers of a disabled loved one, it’s vitally important to make arrangements and properly plan for the future when you are no longer there to care for them.

Specialist lawyer Philip Warford from Renaissance Legal will talk to families and carers about how to plan for the future using carefully prepared Wills and Trusts.

Philip will explain how to safeguard means tested benefits and how to provide financial security for your disabled loved one, as well as the rest of your family. Philip will talk through the different Trust options available, the importance of a Letter of Wishes, choosing the right Trustees, protecting means tested benefits.

Philip is the Managing Director of Renaissance Legal, specialising in helping families and carers of disabled and vulnerable people plan for their future using Wills, Trusts, Powers of Attorney, Court of Protection applications and Inheritance Tax Planning.



  • Managing Dentistry for young people with SEND, Tuesday 5th July, 10.30am (St Peter and St Paul Church, Teddington)
This Family Matters and Bright Futures workshop for parents of young people with additional needs will be presented by Sheryll Jones, Oral health promoter from the Community Special Care dentistry team at King's College Hospital.
Come along for the opportunity to ask your questions about dental care for young people with special needs and listen to a short presentation from the Special Care Dentistry team. 

Book a free place here


Please get in touch with Sue Robson, Bright Futures SEND Transitions Advisor or
Tora Sykes, Children’s Services Administrator to join the Bright Futures mailing list
or for further information.
Sue Robson: suerobson@ruils.co.uk Tora Sykes: torasykes@ruils.co.uk




RISE Summer Canoeing 2022
Sessions are for participants aged 8 years to adult and will be at Lensbury Water Sports Centre. Cost £15.
Book here: https://www2.richmond.gov.uk/Richmondbookings/details.aspx?id=54976


AND I'LL BLOW YOUR HOUSE DOWN - EXPERIENCES OF PARENTING TWO PHYSICALLY DISABLED CHILDREN - LIVESTREAM

One of our members who is the mother of 2 boys with Duchenne Muscular Dystrophy is putting on a one woman show about her family’s experiences and it is going to be live-streamed too.

Tuesday 12th July at 8pm

Book here:


“I thought you might be interested in my new show, 'And I'll Blow Your House Down' which I've just finished (four years later!). It's going to be on at the Old Fire Station arts centre in Oxford on July 12th as part of the Offbeat Festival. It's basically the story of our family over the last 13 years since our 2 boys were diagnosed with Duchenne Muscular Dystrophy, combined with a retelling of the Three Little Pigs - which might sound a bit unusual but I suppose it's about what you do if the Big Bad Wolf blows your house/life/expectations down and you have to start again...
It isn't a misery memoir, more funny and ridiculous than anything else, with some sad parts obviously. It's for 12 years up.
It's being live-streamed as well as me performing it live”





Download your FREE Interactive Journal for Kids

 

https://integralharmony.co/interactive-journal-for-kids/



A Psychology Masters student at the University of Westminster is conducting a research project on anxiety in Autism Spectrum Disorder for parents of children (ages 6-16).

This online study will take less than 30 minutes to complete and asks you multiple choice questions about ASD.
 
Respond here:



Achieving for Children and TAG Youth Club - Transitions Fair - Wednesday 21 September


Access All Areas Transition and Careers Event at Harlequins Rugby Ground in Twickenham. The event will be open to young people and their families aged up to 24 years.  

The event will be held in an exhibition format and include representatives from:

- FE Colleges and Adult Education providers
- Apprenticeships, Traineeships and Employment Providers
- Supported Internships providers
- Employment support organisations
- Sport and Leisure Activities
- Voluntary Sector and Youth Services
- Health and Social Care services
- Housing advice

Families can register their interest in attending and receive further updates by completing this short form. https://forms.gle/NDn6xcLUH2XH5FREA 

.newsflash-logo

Facebook Q&A: Getting Social Care for your Child

We are holding our first ever live Q&A session over on our Facebook group on 13th July 2022 between 11am and 12pm! The topic for this Q&A, as chosen by you, will be ‘getting social care support for your child in England’.

The Q&A will be in a written format rather than a live video so you can drop in to the session whenever you want. You are welcome to submit your questions before the start of the session and then our team will respond during the 11 – 12 window.

Please note that you must be a member of our Parent Group to take part.

More information can be found on our event page.



Transition to Adulthood including Mental Capacity and Care Act recording of webinar from Seashell Trust
The session looks at the key issues facing disabled children, young people and their families - delivered by barrister Steve Broach. Watch the recording of the webinar on YouTube by clicking here.



COUNCIL FOR DISABLED CHILDREN

CDC recently launched a guide for schools on the disability duties in the Equality Act.



EALING FAMILIES WHO HAVE CHILDREN WITH DOWN SYNDROME




 child with toy child (girl)g

Join Ealing Anchor Foundation and Ealing Speech and Language Therapy 

Join the workshop on Thursday 30th June and learn strategies to support communication, gain tips for activities at home as well as find out how communication develops for children with Down's Syndrome. For more information, including how to book.  


ROSE THEATRE - AUDITIONS FOR A CHRISTMAS CAROL

This year the Rose Theatre in Kingston is putting on A Christmas Carol adapted by Morgan Lloyd Malcolm. They are looking for young people to take part in the main house Christmas production and want to reach as many young people as possible who may face barriers to theatre

Read more about the production here:

https://rosetheatre.org/whats-on/a-christmas-carol

For information about auditions, contact:
Lucy Morrell
Director of Learning & Participation
020 8546 6983


Contact have put together some webpages on caring for your child’s teeth, hearing and eyes

For children with a learning disability, autism or both, there may be extra challenges such as sensory issues around having their teeth brushed, or the texture of toothpaste.

Some children are unable to describe tooth pain. Identifying dental problems and treating them early enables children to continue to lead fulfilling lives. Visit our new dental care webpage for advice on caring for your child’s teeth.
Read our information about hearing care and eye care for your child.





Richmond Parent Carer Forum

information@richmondpcf.org.uk



EXPRESS CIC

Spaces Available

Counselling Service for parents/carers of children with
additional needs and disabilities

As parent/carers, life can be very challenging. It can feel overwhelming trying to manage the needs of your child and balance this with all the other parts of your life; family, work, friends. It is often hard to talk about your feelings with those close to you because you don't want to burden them or it can feel like they won't understand. Counselling can offer a safe space where you can talk through all of your difficulties and anxieties. A counsellor is trained to listen and support you in a non-judgemental way, creating a safe space for you to express your feelings, whatever they may be.
This is offered as a low cost service.
If you are interested in this service, please email: counselling@expresscic.org.uk 

Support Groups

Express Mum's Group face to face meet-up
Please email us on jane@expresscic.org.uk or kate@expresscic.org.uk to register. 

Express Mum's Group Zoom meet-up
Please email us on jane@expresscic.org.uk to register. 

Express PDA Group Zoom meet-up
Please email us on info@expresscic.org.uk to register. 

Express Dad's Group face to face meet-up
Please email us on info@expresscic.org.uk to register. 



NATURE PROGRAMME FOR NEURODIVERSE ADULTS 16+

6-week project taking place at Chiswick House & Gardens, led by Kite Studio. Using plants and nature to inspire creativity and making. The course is designed specifically for adults who identify as neurodivergent and are accompanied by their support worker. Spaces are limited and you must book a place in advance.
Who: Neurodiverse Adults (16+) with their support workers
Where: Chiswick House and Gardens, Kitchen Garden
Dates: Thursdays: 9 June – 14 July 2022
Time: 11am – 1pm


ACTIVITY STATION - ONLINE SESSIONS
 
please email activitystation@outlook.com or call us on 07444 881962


 
Exploring Work Summer Programme 

Programme for Surrey based autistic teenage girls aged between 16-18 this Summer 
Sunday 17th July to Sunday 21st August and/or Wednesday 24th August


Application forms and more information about the programme can be found on our website here.



OKMT is delighted to be able to hold their Summer Concert this year to celebrate the superb work of our young musicians from OK Music School, OK Youth Choir and OK Ukulele Group. We are very grateful to St Paul's School in Barnes for hosting our summer concert this year.
When: Saturday 9th July, 4pm
Where: The Wathen Hall, St Paul's School, Lonsdale Road, Barnes London SW13 9JT.
Please book your tickets via https://www.trybooking.co.uk/BQZB 


DANCE THERAPY WORKSHDance Movement Therapy

DANCE THERAPY WORKSHOPSWe have had a fantastic series of Dance Movement Therapy sessions this year with Dance Movement Psychotherapist Emmelia Giorgiou, who has helped us explore different ways to express ourselves through movement, while having lots of fun together.
Our final session will be held on Monday 11th July at St Stephen's Church, Richmond Road, TW1 2PD.
Please email info@okmtrust.org.uk if you would like to join the 4.40pm or 5.30pm class.



If you have any questions or require more information about this project, please contact
me using the following contact details:
timetrekkers-study@kcl.ac.uk


Hounslow All Ability cycling hub at Inwood Park - mural painting event
 
To celebrate the hub and to create a greater sense of community at the cycling hub we will be holding a mural painting event on Saturday 4th  June!
 
From 10am-12pm we welcome visitors to the hub to see what the hub is and to contribute to spray painting on the side of the shipping container with the help of our artist. Our artist will then finish off the rest of the design in the afternoon and it will be completed for cycle hub users to view at regular cycling sessions.
 
The Saturday All Ability cycling sessions will still run on the 4th of June and due to the limited space will still need to be booked onto. Visitors to the hub would only be able to use the cycles if they have booked onto a cycling session.
To book a slot, please contact all.ability@bikeworks.org.uk or call 0208 980 7998 and dial option 3. 



12 hacks to common carer problems from Mobilise - the community for unpaid carers

As carers, we sure are a creative bunch, whether it be out of choice or not. Carers have been sharing their creative solutions to common carer problems. Read the hacks here.


For Hammersmith & Fulham parents:


‘Disabled Children and the Law’ - Professor Luke Clements - Friday 24th June, 10 am – 12.30 pm
Luke Clements is the Cerebra Professor of Law and Social Justice at the School of Law, Leeds University. Luke practised as a solicitor between 1981 and 2021 and in that capacity had conduct of a number of cases before the European Commission and Court of Human Rights.
The training will be held online over Zoom. Book through Eventbrite:
 


‘Reasonable Adjustments in Education for parents and carers of SEND children and young people’ - Andrea Boswell at H&F’s Inspire service - Tuesday 28th June, 10 am – 11.30 am
Join us for this Zoom training session covering the duty of 'Reasonable Adjustments' which is placed on education settings in the Equality Act 2010. Find out more about what reasonable adjustments are and what it means for your children and young people's rights when in education. Book through Eventbrite:


Visit Springhallow Coffee Shop

Join Contact Ealing on their Autism group

Did you know Springhallow Special School has a coffee shop, which some of the pupils work at?

Join Contact Ealing on Friday 17th June, as part of their Autism group, to visit Springhallow, which is one of Ealing's autism specific special schools, and see it from a different perspective.

Places are limited- find out how to book



UNIVERSITY OF EXETER

LITERACY CATCH-UP